Since birth, Gavin has displayed courage, tenacity and an indomitable spirit. His sincere smile will light up any room. Gavin turns 3 years old May 24 and is a happy little boy who is loved by family and friends.
After an MRI in January 2009, it was found that Gavin lives with a disorder known as Agenesis of the Corpus Callosum (ACC). ACC is a birth defect in which the structure that connects the two hemispheres of the brain is partially or completely absent.
Gavin's prognosis is unknown, as the effects of the disorder range from subtle or mild to severe. Gavin is treated with extensive therapy to help his brain create new pathways that most of us are already blessed to be born with.
Although ACC is the most severe of Gavin's diagnosis, he also requires medical care for ongoing feeding issues that require him to be fed primarily by a feeding tube. Gavin also is being treated for infantile scoliosis which has required him to be in an upper body cast for almost a year and a half. These diagnosis have lead to enormous medical bills for Gavin’s parents. He does not walk (yet) nor does he do many of the things a 3 year old would do but he is still one of the happiest little boys you will meet in your life. His determination is visible as he works with therapists and is slowly
making gains each day. For more information on ACC please
visit:
http://www.ninds.nih.gov/disorders/agenesis/agenesis.htm.
Golfing For Gavin is a way for friends and family to show their support to a wonderful family who will use the proceeds to pay off their mounting medical bills. If you don’t golf, you can consider sponsoring a golfer or a team or just join us on May 22!
Thank you for your help!
Come to a tournament, or donate to the
Golfing for Gavin Fund